Tuesday, September 9, 2008

Hmmm

Blogging…

A diary..public journal?
Soap box?

A different thing for different people?


Mine is an outlet…

I don’t know really why its “published”. (why its online for anyone to see)
Mostly at the suggestion of my brother, whose writings I have always been jealous.
He is SOO much more articulate than I.

I do find it therapeutic to express myself on paper and process thru the thots rolling around in my head. When I go back and re-read some of my stuff… (after suffering thru my fat fingered typos and repetitive or missing word/thot content attributed to brain malfunction) it sounds different than it did in my head.

Lately, a lot of my posts have been negative and depressing. Yukky whiney stuff.
Why such suffering? What point or purpose for such constant pain? Seems all I write.

Yeah.. well I dunno.

What I do know.. is that I am learning patience in ways that I never imagined before.
I am forced to learn to handle things differently. The frustration that I felt before.. trying to effect control over things around me...expecting outcomes that suited me…and when results weren’t what I wanted…frustration morphed into agitation morphed into anger into rage at whatever…at the world. Some sense of injustice roared thru my veins in hulk-ian (?) fashion and everyone around me was made aware of my disdain.

I have had this poor reaction to my environment for years...decades likely.
It has driven a wedge between myself and my family always…I was just to damned ignorant to see it.. I was only recently made aware of its effects on those so close to me.

For me… from my perspective.. I was simply venting. When I was done, I was done. For those around me I was seen as bitter, angry - even mean at times. Surely surly and corrosive.

I do believe that some measure of my discontent was/is driven by my sense of helplessness. A belief that I have little control over my environment. At least less control than I desire. At the risk of expressing some “victim” posture I would have to say that for many years I was told that I did not. That I was unable to do many things. Many ideas and projects - hopes dreams.. were quashed. I was told relentlessly (you cant..) (”you don’t have enough lead in your pencil”).. I was not encouraged to try new things in ways that I should have been. I was rarely allowed to express my opinions about stuff. There was a very real sense of being restrained…that feeling carried from adolescence haunts me still.
I don’t think my ol’man ever met Yoda.

It seems it takes a terminal medical condition for me to learn the patience I should have been exercising all along.
To show my friends and family the respect they deserve.

I’ve been an ass.
But I am learning~.

Thursday, August 28, 2008

click...

Click, View...Text Size -> * Larger

Better.

Wednesday, August 27, 2008

Saturday, August 23, 2008

Today...

I am tired.
Again.

Today sucked.
My leg hurts.

I can't close the fingers on my left hand.
I got nothing done today.

This is getting old.


I dont know what to do.

Saturday, August 9, 2008

results

new MRI shows new stuff around the tumor.

Unable to tell if it is new growth or post radition tumor response to the treatment.
Doc wants a new MRI in 30 days.
Trip to SF exhausted me. I've slept all day. Been sleeping for for nearly 24 hrs now.
My weight is up to 270 lbs.
Doc wants an MRI that can only be done in a closed MRI machine so I don't know if I will fit in the damn thing.

Doc continues to reassure me of the diagnosis, and that being an NF-1 carrier, at this point, is a good thing. It seems that the nf-1 tends to retard the growth of this type of tumor... slows things down a bit. Now if I can control symptoms enough to make it worth getting up in the morning I will be alright. I hurt too much.

Friday, August 8, 2008

Road Trip...

Headed for UCSF today.

My friend is driving me of course.

I have an MRI and a doc app't after.
My entire day will be consumed with this venture.

I look forward to being able to post something positive someday.
It doesn't look likely anytime soon. I hate that.
I am sure people are tired of hearing me. I am tired of hearing me.

What's on the other side of ones breaking point?

Thursday, July 31, 2008

I am...

Very tired...

Losing battles at every turn...

In increasing Pain...

Losing the desire to fight anymore...


My head hurts.


Something needs change.