If anything can go wrong...

It's nearly 2 a.m. ...

I can't sleep...AGAIN~!

One difference this time though, my youngest daughter, Mariah is awake with me.

She has developed an awful cough and is running a low grade temp. Dry and coarse, it seems to return from time to time just to make things difficult for her and me.
We've tried a few non-prescription things tonite... including throat spray-which she hates with a passion and the remnants of a prescription cough syrup in the cupboard.

She continues barking - unable the stop this nagging monster. Its awful to hear her continue when I can't do anything to help her tonite.
I don't know what else to do.. especially this late.

Tomorrow she is scheduled to go with her class to San Francisco for their graduation celebration.
We are insomniacs here, creatures of the night. She has a hard time sleeping at night so she was so careful to get to bed early.
Now this cough has had her up for the last hour. She is worried that she will have trouble in the morning on so little sleep.

Crap.

Well, now that I got THAT off my chest I'm going back to try and sleep....


Night.

Mariah EEG and MRI...

The trip to UCSF for Mariah went well Tuesday.

If you read this blog you know that my brain stem tumor is caused by NF-1.

Mariah my youngest daughter is also a carrier.

This means we have to take her to get brain mri’s every year or two.. to be sure there aren’t any developments like the one in my head now…

This year we happen to be getting a sleep-deprived EEG as well for another issue, but its cool.. and it gives us a great point of reference when treating or dealing with the nf-1 in the future

Here she is getting a buncha electrodes connected to her head for an sleep deprived EEG…
Afterwards, we will head around the corner for the MRI…

OWE! Pulling hair!!

I'm so pretty ~!~!

Follow-up with her neurologist is Monday...

I will post with results then...