results

new MRI shows new stuff around the tumor.

Unable to tell if it is new growth or post radition tumor response to the treatment.
Doc wants a new MRI in 30 days.
Trip to SF exhausted me. I've slept all day. Been sleeping for for nearly 24 hrs now.
My weight is up to 270 lbs.
Doc wants an MRI that can only be done in a closed MRI machine so I don't know if I will fit in the damn thing.

Doc continues to reassure me of the diagnosis, and that being an NF-1 carrier, at this point, is a good thing. It seems that the nf-1 tends to retard the growth of this type of tumor... slows things down a bit. Now if I can control symptoms enough to make it worth getting up in the morning I will be alright. I hurt too much.