The trip to UCSF for Mariah went well Tuesday.
If you read this blog you know that my brain stem tumor is caused by NF-1.
If you read this blog you know that my brain stem tumor is caused by NF-1.
Mariah my youngest daughter is also a carrier.
This means we have to take her to get brain mri’s every year or two.. to be sure there aren’t any developments like the one in my head now…
This year we happen to be getting a sleep-deprived EEG as well for another issue, but its cool.. and it gives us a great point of reference when treating or dealing with the nf-1 in the future
Here she is getting a buncha electrodes connected to her head for an sleep deprived EEG…
Afterwards, we will head around the corner for the MRI…
This means we have to take her to get brain mri’s every year or two.. to be sure there aren’t any developments like the one in my head now…
This year we happen to be getting a sleep-deprived EEG as well for another issue, but its cool.. and it gives us a great point of reference when treating or dealing with the nf-1 in the future
Here she is getting a buncha electrodes connected to her head for an sleep deprived EEG…
Afterwards, we will head around the corner for the MRI…
OWE! Pulling hair!!
I'm so pretty ~!~!
Follow-up with her neurologist is Monday...
I will post with results then...
2 comments:
Oh Cliff! She is so beautiful!!!! I can't believe what a brave little girl Mariah is to endure EEG's and MRI's year after year. I am a grown woman and still want my mommy! LOL
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